I have been rather quiet on here for the past couple months. I have needed to take a life break with everything to concentrate on my health following me starting a new medication, ‘Ropinirole’, during lockdown 2.0 (Nov). For those of you who aren’t aware, alongside MS I also have an underactive Thyroid which resulted as... Continue Reading →
This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
I have been waiting for my bathroom to be converted into a wet room, or at the very least have the bath ripped out and a stand-alone shower to be put in its place since my application for a Disability Facilities Grant (DFG) last October (2019) following my relapse. There is usually around a 6... Continue Reading →
When I was younger I absolutely loved swimming, with my costume having all of the badges obtained stitched to it and, much to my sisters dismay, all of my certificates pinned on the fridge. I haven’t swam since I was about 12…that kind of went out of the window when I went to upper school,... Continue Reading →
‘My Daddy was a bank robber, but he never hurt nobody, he just loved to live that way, and he loved to steal your money…’ It was around 1996 and my Dad was playing ‘The Story of The Clash’ in the car, ‘I Fought the Law’, and ‘Should I Stay or should I go’ was... Continue Reading →
Vehicles breakdown but being a non-driver, I’d never experienced this trauma… UNTIL RECENTLY! I finally have a breakdown story with my scooter guys… buckle up. Going my merry little way along a path I take regularly, and I was greeted with some recently added grit. Now this grit wasn’t a thin layer (as initially thought... Continue Reading →
The shame of not working. For whatever reason, where has acquired ‘shame’ come from? From within you? society? That there is this ideology that you possibly cannot contribute to society unless you are working. I have soon come to realise and accept a person’s value isn’t dependent on how much they contribute to the economy,... Continue Reading →
There are many mornings when I wake up, shuffle into the bathroom resembling nothing short of John Wayne, one eye closed in an attempt to overcome the double vision, sit there on the loo spaced out with exhaustion despite getting a good 8 hours sleep, and then bumping back and forth between the walls because... Continue Reading →
Ahhh the British summertime is a funny one, isn’t it? Full on melt downs (sun or otherwise with the current pandemic at the moment), gale force winds, and rain all in the space of a week. However, when the sun is out this is when I am at my optimum level and many of my... Continue Reading →
Do you ever just not know who you are? Everybody leads a different life, and for various different reasons. Have you ever got lost to find your way? I know I have. Some people have lived the same life with the same routines, responsibilities etc. for years and haven’t really known any different, whilst holding... Continue Reading →
