I absolutely love travelling, seeing the world, experiencing and learning from different people and cultures. It’s a passion that I hold dear to my heart, and I aim to visit all 195 countries before I join the gig in the sky. However, this piece brings me a bit closer to home as I talk about... Continue Reading →
Carers Week 8-14 June 2020
Being a carer comes in many forms. Some individuals wouldn’t even consider themselves a carer. In essence, if you provide support for someone who cannot otherwise cope – you are a carer, irrespective of whether it is ongoing, ad-hoc, or recovery from an injury/illness/addiction etc – it is care. Care that someone is providing for... Continue Reading →
There’s comfort in the panic…
Whilst lockdown has taken so much away from us, have you found anything that you have finally got around to doing, will continue to do, or dare I say it, anything that you will miss from lockdown ? I sure have and will… After my relapse in October and coming out of work I have... Continue Reading →
The drugs don’t work, they just make you worse…
OK they do for many, but not for me it seems. No this isn’t a woes me, but after 3 different treatments in it just becomes much like that Hillary Clinton meme if you’ve seen it, where you just walk (or shuffle), chuckle to yourself and you throw your hands in the air. Come on... Continue Reading →
I’m not growing up, I’m just burning out…
We’ve all been there at some point, go about our daily life in whatever it consists of (work, parenting, volunteering, caring for someone/yourself, leisure activities, socialising…), but if you’re not careful too much of one, or many things, can eventually get on top of you and then BAM out of nowhere the burnout happens. Your... Continue Reading →
They see me rollin’…
Hannah has wheels. Hannah has a horn. Hannah has front and rear suspension, and she is coming for you at 4 mph. I wouldn’t say that the purchase of my mobility scooter has been 7 years in the making, far from it, but definitely the last 2 or so. The absolute reluctance of owning... Continue Reading →
Hello darkness my old friend…
Almost 7 years diagnosed and numerous ‘minor’ relapses (I say minor in that I can still function with my life for the best part with a few adjustments and taking a step back for a week or so to recover (to a extent)), Rebif injections, Tysabri infusions, 2 rounds of Lemtrada, more steroid orals and... Continue Reading →
What is all of this MS palava?
So, many people see and hear the effects Multiple Sclerosis has on me, but why? What is causing me to drag my feet? Go dizzy? Constant pins and needles?Numbness/Paralysis? Fatigue? Double vision, to name but a few? To understand MS, it helps to understand how the central nervous system works. MS is believed to be... Continue Reading →
Tysabri – Miss Positive(ity)
It was like being diagnosed all.over.again. Early March this year there I was again, hobbling into neurology, for what had started to become a monthly visit for one reason or another. Only now, I was heavily reliant on 2 crutches, in the space of a year I had gone from nothing, to a walking to... Continue Reading →
It’s just a trapped nerve gone wrong.
Wednesday February 13th 2013 . The day before my 25th birthday. 'You have Multiple Sclerosis'. Happy Birthday. The relapse which led to my diagnosis started mid November 2012, I used to start work at 6am, so by the time I got home at 2.30 a nap was needed, makes perfect sense doesn't it?! Now, I... Continue Reading →
