*** My friend Hannah. My friend Hannah is my sister in laws sister. My friend Hannah loves the same music as me. My friend Hannah is one of the bonus sister in laws I got, when my brother married Hannah’s sister. My friend Hannah, is my sister. My friend Hannah has MS & Parkinson’s -... Continue Reading →
About sums up my working life from about a year or so after my MS diagnosis, with a stint at College and University thrown in there. My life went from 100 to 0 overnight it seems, but this post isn’t about my paid working life, the opposite – my volunteering life. *** When restrictions were... Continue Reading →
Wednesday February 13th 2013 . The day before my 25th birthday. ‘You have Multiple Sclerosis’. I was asked the other day how long it took to accept my diagnosis, and my answer? ‘right now. This very moment, after 8 years’. I say that because it wasn’t until that moment that I was able to answer... Continue Reading →
This week I attended the International Progressive MS Alliance webcast, with a focus on how blood tests and artificial intelligence (AI) in MRIs could predict MS progression. Hosted by Trishna Bharadia, International Patient Advocate, who I had the pleasure of meeting at MS Session in Prague; Dr.Robert Fox, neurologist and Vice Chair for Research of... Continue Reading →
I have been waiting for my bathroom to be converted into a wet room, or at the very least have the bath ripped out and a stand-alone shower to be put in its place since my application for a Disability Facilities Grant (DFG) last October (2019) following my relapse. There is usually around a 6... Continue Reading →
‘My Daddy was a bank robber, but he never hurt nobody, he just loved to live that way, and he loved to steal your money…’ It was around 1996 and my Dad was playing ‘The Story of The Clash’ in the car, ‘I Fought the Law’, and ‘Should I Stay or should I go’ was... Continue Reading →
Vehicles breakdown but being a non-driver, I’d never experienced this trauma… UNTIL RECENTLY! I finally have a breakdown story with my scooter guys… buckle up. Going my merry little way along a path I take regularly, and I was greeted with some recently added grit. Now this grit wasn’t a thin layer (as initially thought... Continue Reading →
The shame of not working. For whatever reason, where has acquired ‘shame’ come from? From within you? society? That there is this ideology that you possibly cannot contribute to society unless you are working. I have soon come to realise and accept a person’s value isn’t dependent on how much they contribute to the economy,... Continue Reading →
There are many mornings when I wake up, shuffle into the bathroom resembling nothing short of John Wayne, one eye closed in an attempt to overcome the double vision, sit there on the loo spaced out with exhaustion despite getting a good 8 hours sleep, and then bumping back and forth between the walls because... Continue Reading →
Ahhh the British summertime is a funny one, isn’t it? Full on melt downs (sun or otherwise with the current pandemic at the moment), gale force winds, and rain all in the space of a week. However, when the sun is out this is when I am at my optimum level and many of my... Continue Reading →
